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| The C.A.R.E. Mission: To
formulate, promote and
lead initiatives to
prevent sudden cardiac
death due to acquired
and heritable heart
rhythm disorders by: |
- Advocating increased
support for
comprehensive
scientific research
and clinical trials.
- Educating patients,
the public and
healthcare
professionals to
increase awareness.
- Advancing strategies
to identify, protect
and support at-risk
individuals and
their families.
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| This website is
dedicated to the memory
of those whose lives
were lost to sudden
cardiac death, and to
the survivors, families
and friends who have
devoted tireless energy
supporting the C.A.R.E.
Foundation's mission to
help save lives. |
2009 Maggie Dixon Classic and Heart Health Expo
December 13th, 2009
The Mega Heart™ comes to Madison Square Garden!
The MEGA Heart™, the world’s first inflatable heart designed as an educational, walk-through exhibit that demonstrates the effects of heart disease and ways to prevent and treat it, will make its New York City debut at the 2009 Maggie Dixon Classic Heart Health Expo on Sunday, December 13th.
The 2009 Heart Health Expo will feature:
For kids and teens:
- Free heart screening for children and young adults under age 22 and receive a mini-basketball
- Create Heart Art with the Children’s Museum of Manhattan and enter to win a Wii and WiiFit
- Shoot hoops at the Knicks “Groove Truck”
- Rangers Fun House
- Face painting and balloon artists
For adults:
- Receive a mini-basketball when you have your blood pressure, pulse, and body-mass index checked
- Learn about heart-healthy nutrition and life-style changes
- Become an organ donor by registering with “Donate Life”
- Talk to medical professionals from SUNY Downstate Medical Center about your Game Plan for a Healthy Heart
For all fans:
- Learn to save a life with FREE CPR and AED training from the Fire Department of New York
- Experience the Mega Heart, the world’s only inflatable, walk-through human heart model
- “Ask the Trainers” exercise mini-camps with University Sports Medicine (SUNY Downstate) athletic trainers
- Meet young heart patients and hear their stories of courage and hope
What’s YOUR Game Plan for a Healthy Heart?
Download Maggie Dixon Classic 2009 Flier (PDF)
Download the 2008 flyer (PDF)
Download the 2007 flyer (PDF)
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Lifesaving Test Held Up by Paperwork
GMA Steps In to Get Answers for Sick Boy On Medicaid Who Couldn't Get Test
See CJ’s Story |
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| Broken
Hearts Electric
Shock is
a 40 minute
documentary
telling about
the producer's
(Tom Sutch)
coping with
LongQT Syndrome
after the sudden
death of his
father at age
39. The
movie is
powerful yet
shows hope about
the efforts to
inform the
public and how
each of us can
help save lives.
Broken
Hearts Electric
Shock won first place
at the Long
Island Film
Festival in July
2007, is being
entered in other
festivals.
You can view
Tom's movie by
clicking on the link
below.
Quicktime is
required for
viewing. |
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Broken Hearts
Electric Shock
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The
Advocate's
Perspective
-
by Mary Jo Gordon, Executive Director, C.A.R.E. Foundation, Inc.
EPLab Digest - September 2007
|
For
patients
and
families
at risk
for SCD
due to
heart
rhythm
disorders,
an
abnormal
12-lead
electrocardiogram
often
yields
the
first
critical
clues of
serious
underlying
disease. Read the
article..
|
| Tips
for
Living
with
Heart
Rhythm
Disorders |
 |
For
those of
us with
medical
conditions
such as
heart
rhythm
disorders,
it is
very
important
to wear
a
medical
alert
tag
(bracelet
or
necklace).
Medic
alert
tags let
healthcare
professionals
such as
paramedics
and
emergency
room
personnel
know
about
our
condition
when we
may not
be able
to tell
them
ourselves.
This is
especially
important
when
we’re
out and
about
without
family
or
friends
to speak
on our
behalf.
Quickly
assessing
our
medical
condition
in an
emergency
may be
the
difference
between
life and
death.
Though
some of
us
already
wear
medical
alert
tags,
many of
the
available
designs
aren’t
exactly
fashion
statements!
We
looked
around
and
found
these
two
companies
that
make
VERY
cool
tags. |
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|
 |
 |
To
learn
more
about
these
tags and
others,
click on
the
links
below
the
images.
In
addition
each
company
will
donate a
percentage
of your
purchase
to the
C.A.R.E.
Foundation.
Wearing
a
medical
alert
tag can
be a
real
life
saver.
Help
yourself
and
thanks
in
advance
for
helping
C.A.R.E!
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We are sorry to announce the passing of CARE's founder Doris Toran Goldman.
Doris Nimoityn Toran Goldman, 77, was born and raised in Philadelphia, PA, and lived in Laguna Wood, CA, passed away on July 29 from lung cancer.
Doris was not only an extraordinary mother, grandmother, and great grandmother, she was throughout her life a woman of impact for others.
She is survived by daughter Nancy Toran Duitch and her husband, Dennis Duitch, son –in-law Jon Turner, grandsons, Ryan Duitch and Jacob Turner, and her extended family Daryl Duitch Gordon, Stacey Duitch Light, their husbands and children.
She served for years on the Democratic National Convention and for the American Jewish Committees in Philadelphia, PA, and Orange County, CA. In honor of her son Jack Toran and daughter Sharon Toran Turner who both succumbed to Sudden Cardiac Death as young adults, Doris founded and served as Executive Director for the Cardiac Arrhythmia Research & Education Foundation (CARE) dedicated to information and prevention.
Click Here to send your memory of Doris or Make A Donation in her memory.
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 |
| There are
many ways to
show you C.A.R.E. Click
here to
learn how
you can make
a donation,
send
flowers,
shop on the
Internet or
search the
Web and help C.A.R.E. |
|
|
 |
Learn more
about Heart
Disorders,
Genetics,
Medications,
Professional
Organizations,
Screening,
Advocacy and
more.
NEW! Find links
to current
articles,
research and
medical
updates that
will help
you stay
current on
heart rhythm
disorder
news. |
|
|
 |
 Our
NEW Online
Community
connects
people with
heart rhythm
disorders to
make friends
and discuss
issues that
help you
feel that
you are not
alone.
Membership
is FREE!  |
UCONN, RUTGERS, PENN STATE, ARMY TIP-OFF IN THIRD ANNUAL MAGGIE DIXON CLASSIC ON SUNDAY, DECEMBER 14 AT MADISON SQUARE GARDEN
Download PDF here!
|
GINA passed 414-1 in the House!!!
Genetic Information Nondiscrimination Act will be the first civil rights act passed by the Congress in almost twenty years!
Read More
|
AHA Scientific Statement
May 6, 2008
Update with corrections
Cardiovascular Monitoring of Children and Adolescents With Heart Disease Receiving Medications for Attention Deficit/Hyperactivity Disorder
A Scientific Statement From the American Heart Association Council on Cardiovascular Disease in the Young Congenital Cardiac Defects Committee and the Council on Cardiovascular Nursing
Read More Cardiovascular Monitoring of Children and Adolescents
|
NEWS from the American College of Cardiology (ACC) ’08:
American Heart Association Releases “Hands-Only CPR” Advisory Statement
When you see an adult suddenly collapse, use Hands-Only CPR: that's CPR without mouth-to-mouth breaths. And it can help save lives.
Hands-Only CPR is CPR without mouth-to-mouth breaths. It is recommended for use by bystanders who see an adult suddenly collapse in the "out-of-hospital" setting. It consists of two steps:
- Call 911 (or send someone to do that).
- Begin providing high-quality chest compressions by pushing hard and fast in the center of the chest with minimal interruptions
For more information about Hands-Only CPR visit: americanheart.org/handsonlycpr |
Results of Home Use of Automated External Defibrillators for Sudden Cardiac Arrest Trial (HAT)
Previous studies of lay rescuer AED programs in locations such as airports and casinos have shown survival rates as high as 74% from out-of-hospital witnessed ventricular fibrillation sudden cardiac arrest when bystander CPR is provided and defibrillation occurs within 3-5 minutes of collapse. Since over 70% of out-of-hospital cardiac arrests occur in the home, the HAT study tested whether the use of a home AED, in addition to CPR and calling 9-1-1, could improve survival for patients with a previous anterior-wall myocardial infarction not eligible for an implantable cardioverter-defibrillator.
Check the following resources for more information regarding HAT:
Read more... |
Recruit – Cardiac Arrhythmias…
-MEDTRONIC SEEKING LONG-DISTANCE RUNNERS BENEFITTING FROM MEDICAL TECHNOLOGY
Read more... |
ATLANTA, Georgia (CNN) -- Joshua Miller trotted off the football field after making a special-teams play and headed to the bench.
Automated external defibrillators are increasingly available in public places, including airports and malls.
Louis Acompora manned his lacrosse goal, blocked a shot with his chest and prepared to make a play on the ball in his first high school game.
Within seconds, each teen collapsed. In both cases, coaches, medical personnel and parents rushed to the boys, figuring they were dehydrated, had had the wind knocked out of them or had suffered a concussion.
Before they realized the boys were in cardiac arrest, both were dead.
Two 14-year-old boys. Two lives that could have been saved, their parents said, with one solution: an automated external defibrillator.
Read more... |
WebMD Articles
relating to
Inherited
Arrhythmias
|
Highlights of the KiKi
McBride
Memorial
Court
Dedication Saturday,
July 28,
2007
Epworth
LeSourd
United
Methodist
Church
in
Tacoma,
Washington
View the
Highlights
of our Heart to Heart patient meeting – January 20th, 2007, Los Angeles, CA - Click here for details
Click here to see the schedule and updates on the C.A.R.E. Foundation “Heart to Heart” Patient Support Meetings.
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